COVID-19 survey communication toolkit

Use these resources, available in 7 languages, to share the new global Rare Barometer survey with your networks.

 

The more people who respond and share their experiences, the more powerful our voice will be!

Click on the links to download the materials.

1. Survey hyperlink

Share this link to the survey: https://bit.ly/2xCUw9l 

2. Rare Barometer survey overview

Learn more about the survey, who can respond and how the results will be used.
Rare disease patients experience of COVID19 survey overview

3. Language-specific communications materials

Download and use the suggested posts, images and email template, translated into your language, to promote the survey via your networks. You can also share our posts from @eurordis on Twitter, @eurordis on instagram or the EURORDIS Facebook page via your social media accounts.

English

Email template

Suggested social media posts

 

French

Email template

Suggested social media posts

 

German 

Email template

Suggested social media posts

 

Italian  

Email template

Suggested social media posts

 

Portuguese 

Email template

Suggested social media posts

 

Russian

Email template

Suggested social media posts

 

Spanish 

Email template

Suggested social media posts

 

 

 

4. Rare Barometer logos

Use the Rare Barometer logos alongside articles promoting the survey on your website.

Rare Barometer Logo (white)

Rare Barometer Logo (purple)

Page created: 22/04/2020
Page last updated: 27/04/2020
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases