International rare disease events

January 2020

Digitalisation and infectious diseases: improving patient outcome in the age of big data

20-21 January, Basel Switzerland, more information

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information


February 2020

8th ACCELERATE Paediatric Oncology Conference

6-7 February 2020, Brussels, Belgium, more information

Rare Disease Film Festival

10 February, UK, more information

International Childhood Cancer Awareness Day (ICCD 2020)

18 February, worldwide, more information

XVIII International Conference on Duchenne and Becker Muscular Dystrophy

28 February - 1 March, Rome, Italy, more information


March 2020

6th RE(ACT) Congress - 4th IRDiRC Conference 2020

11-14 March, Berlin, Germany, more information

4th ISNS Middle East-North Africa Regional Meeting 

8-11 March , Limassol, Cyprus


April 2020

Human Genome Meeting

05-08 April 2020, Perth Australia, more information 

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information


May 2020

International Huntington’s Disease Awareness month

May, worldwide, more information

SIOP Europe 2020 Annual Meeting

4-8 May, Valencia, Spain, more information

EMSP 2020 Annual Conference

7-9 May 2020, Madrid, Spain, more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

9-11 May 2020, Glasgow, Scotland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland

Rare Diseases International 6th Annual Membership Meeting

19 – 20 May 2020, Geneva, Switzerland


July 2020

3rd EURO-NMD translational Research Summer School, edition 2020

6-10 July, Lieden, Netherlands, more information


September 2020

The ‘’3rd Pan-Asian Regional Conference on Thalassaemia & other Haemoglobinopathies’’ 

Dates to be confirmed, New Delhi, India more information


October 2020

7th international Symposium on NBIA & related disorders

1-3 October, Lausanne, Switzerland, more information


November 2020

The ‘’15th International Conference on Thalassaemia & other Haemoglobinopathies’’  & the ‘’17th TIF Conference for Patients & Parents’’  

Dates to be confirmed, Thessaloniki, Greece more information


March 2021

The ‘’3rd Pan –Middle East Conference on  Haemoglobinopathies’’

Dates to be confirmed, United Arab Emirates more information

Page created: 03/12/2009
Page last updated: 16/01/2020
 
 
Die Stimme der Menschen mit seltenen Krankheiten in EuropaEURORDIS Die internationale Stimme für Menschen mit seltenen KrankheitenRare Disease International Ein moderiertes mehrsprachiges Forum, das Patienten, Familien und Experten zum Erfahrungsaustausch zusammenführt. RareConnect Das Rare Barometer Programm ist eine EURORDIS-Initiative, die Umfragen durchführt und die Erfahrungen von Patienten mit seltenen Erkrankungen in Fakten und Zahlen umwandelt, die wiederum Entscheidungsträgern vermittelt werden können.Rare Barometer Eine internationale Aufklärungskampagne, die jedes Jahr am letzten Tag im Februar stattfindet. Der Tag der Seltenen Erkrankungen ist eine EURORDIS-InitiativeRare Disease Day Nehmen Sie am größten Zusammentreffen von Interessenvertretern für seltene Krankheiten in Europa teil und besuchen Sie die zweijährliche Europäische Konferenz für Seltene Krankheiten und Orphan-Produkte (ECRD). ECRD ist eine EURORDIS-InitiativeEuropean Conference on Rare Diseases