International rare disease events

September 2019

Aortic Dissection Awareness Day

19 September 2019, worldwide, more information

7th UIA Associations Round Table Asia-Pacific

19-20 September 2019, Pattaya, Thailand, more information

Integrated Care, a Global Approach

19-20 September, Burgos, Spain, more information

China Rare Disease Summit

20-22 September, Shenzen, China, more information

UN High Level Meeting on Universal Health Coverage

23 September, New York, USA, more information

RAREsummit19

23 September, Cambridgeshire, England, more information

Conference “Autism and the Fragile X-associated Disorders"

23-24 September, Belgrade, Serbia, more information

Dravet Syndrome Conference 2019

26 September, Madrid, Spain, more information


October 2019

International Gaucher Day

1 October, more information

8th Annual Symposium on ATP1A3 in Disease 2019

3-4 October, Reykjavik, Iceland, more information

APARDO Symposium 2019

19-21 October, Taipei, Taiwan, more information coming soon.


November 2019

Innovation Bootcamp in Rare Diseases

4-5 November, Leuven, Belgium, more information

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information and registrations

The 14th Meeting of the International Conference on Rare Diseases and Orphan Drugs (ICORD)

11-13 November, Rishon Lezion, Israel, more information

EPF Congress

12-14 November, Brussels, Belgium, more information

World Orphan Drug Congress

12-14 November, Barcelona, Spain

A limited number of free passes are available for patient organisations. More info.

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information

International Rare Disease Research Consortium (IRDiRC) Meeting

21-22 November, Paris, France

Skin appendages: Developmental and patophysiological aspects

22 November, Paris, France, more information

International conference on Quality of Life for Osteogenesis Imperfecta (OI)

22 - 25 November, Amsterdam, more information


December 2019

Patient Solidarity Day 2019

7 December, more information


January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information


April 2020

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information


May 2020

International Huntington’s Disease Awareness month

May, worldwide, more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

9-11 May 2020, Glasgow, Scotland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland

Page created: 03/12/2009
Page last updated: 16/09/2019
 
 
Die Stimme der Menschen mit seltenen Krankheiten in EuropaEURORDIS Die internationale Stimme für Menschen mit seltenen KrankheitenRare Disease International Ein moderiertes mehrsprachiges Forum, das Patienten, Familien und Experten zum Erfahrungsaustausch zusammenführt. RareConnect Das Rare Barometer Programm ist eine EURORDIS-Initiative, die Umfragen durchführt und die Erfahrungen von Patienten mit seltenen Erkrankungen in Fakten und Zahlen umwandelt, die wiederum Entscheidungsträgern vermittelt werden können.Rare Barometer Eine internationale Aufklärungskampagne, die jedes Jahr am letzten Tag im Februar stattfindet. Der Tag der Seltenen Erkrankungen ist eine EURORDIS-InitiativeRare Disease Day Nehmen Sie am größten Zusammentreffen von Interessenvertretern für seltene Krankheiten in Europa teil und besuchen Sie die zweijährliche Europäische Konferenz für Seltene Krankheiten und Orphan-Produkte (ECRD). ECRD ist eine EURORDIS-InitiativeEuropean Conference on Rare Diseases