Belgium
Rare Disease Organisation Belgium (RaDiOrg Belgium)
www.radiorg.be
Bulgaria
National Alliance of People with Rare Diseases (NAPRD)
rare-bg.com
Germany
Allianz Chronischer Seltener Erkrankungen (ACHSE)
German National Alliance for Chronic Rare Diseases
www.achse-online.de
Italy
Federazione Italiana Malattie Rare (UNIAMO)
Italian Federation for Rare Diseases
www.uniamo.org
Luxembourg
ALAN - Maladies Rares Luxembourg
www.alan.lu
Netherlands
VSOP - Vereniging Samenwerkende Ouder En Patiëntenorganisaties
www.vsop.nl
Russian Federation
National Association of Patients with Rare Diseases '"GENETICA"
www.nacgenetic.ru
United Kingdom of Great Britain and Northern Ireland
New Zealand
New Zealand Organisation for Rare Disorders (NZORD)
www.nzord.org.nz
Taiwan, Province of China
Taiwan Foundation for Rare Disorders (TFRD)
www.tfrd.org.tw