Gemeinsam für eine bessere Versorgung – Empfehlen Sie das Video zum Tag der Seltenen Erkrankungen!

Scene from Rare Disease Day 2014 video

The Rare Disease Day 2014 video is now available in seven different languages for you to enjoy and to share. With the focus on Care this year, the 2014 video poignantly demonstrates the kind of care people with rare diseases need and deserve, and the ways family members, health professionals, and the entire rare disease community are working together to provide care.

Created in Barcelona by production company These Glory Days, the Rare Disease Day 2014 video is accompanied by the music of Delorentos, who generously offered the use of their aptly named song Care For.

We encourage you to show the video at your conferences and events, post it on your association website or share it through social media channels such as Facebook. If you wish to have the video text in another language, send us your translation and we can embed it in the video for you.

There is also a 30-second version of the video available, created especially for news spots. Learn more.

Besides These Glory Days and Delorentos, a big round of applause goes out to the many individuals and families living with a rare disease who appear in the video, including Maria and Judit; Luis; Roman and Mireia and Carla; Arturo and David; Carla and Bertie and Jordi; Isaac; Nacho and David; as well as the health professionals and researchers who participated. The cooperation in joining together to create the Rare Disease Day 2014 video is emblematic of the unity and solidarity patients and families, professionals and policy makers, researchers and industry are demonstrating to find treatments and care for people with rare diseases. Be a part of the Rare Disease Day momentum – share the Rare Disease Day 2014 video and let’s show the world that it is entirely possible to Join Together for Better Care

Louise Taylor, Communications and Development Writer, EURORDIS

Page created: 11/02/2014
Page last updated: 12/02/2014
Die Stimme der Menschen mit seltenen Krankheiten in EuropaEURORDIS Die internationale Stimme für Menschen mit seltenen KrankheitenRare Disease International Ein moderiertes mehrsprachiges Forum, das Patienten, Familien und Experten zum Erfahrungsaustausch zusammenführt. RareConnect Das Rare Barometer Programm ist eine EURORDIS-Initiative, die Umfragen durchführt und die Erfahrungen von Patienten mit seltenen Erkrankungen in Fakten und Zahlen umwandelt, die wiederum Entscheidungsträgern vermittelt werden können.Rare Barometer Eine internationale Aufklärungskampagne, die jedes Jahr am letzten Tag im Februar stattfindet. Der Tag der Seltenen Erkrankungen ist eine EURORDIS-InitiativeRare Disease Day Nehmen Sie am größten Zusammentreffen von Interessenvertretern für seltene Krankheiten in Europa teil und besuchen Sie die zweijährliche Europäische Konferenz für Seltene Krankheiten und Orphan-Produkte (ECRD). ECRD ist eine EURORDIS-InitiativeEuropean Conference on Rare Diseases