#Pledge4RD ahead of the 2019 European elections

From 23 to 26 May 2019, citizens across the EU will vote for the Members of the European Parliament (MEPs) they want to represent them for the next five years.

To ensure that the 25 - 30 million people living with a rare disease in Europe and their families are not left behind and achieve their highest potential of health and well-being, we are calling on MEPs to #Pledge4RD.

 

Ask your MEP to #Pledge4RD

>> Why should your MEP care?

Because rare is common. Many people are affected by a rare disease or know someone who is.

Rare diseases affect 25-30 million people in the EU, nearly 5% of the EU population, or the population of Belgium and the Netherlands combined. This estimate only increases when considering the carers, families and friends who need to support their loved ones.

There are over 6,000 rare diseases. The reality is that most people know somebody that is affected by a rare disease, whether they realise it or not.

Now is the time to call on your returning MEP or a candidate MEP to pledge their support for rare diseases.

>> How can they #Pledge4RD? <<

  1. Download and print the #Pledge4RD sign.
  2. Post their photo on social media using #Pledge4RD #EUelections2019 and tagging @eurordis

 

The #Pledge4RD to leave no one behind

To ensure that the 25 - 30 million people living with a rare disease in Europe and their families are not left behind and achieve their highest potential of health and well-being, MEPs can #Pledge4RD to support a new political framework that:

Read the full pledge leaflet

Click here to download the PDF >>>

 

MEPs & candidates who have pledged

#Pledge4RD #EUelections2019

We thank MEPs and candidates who have already pledged for rare diseases:

Czech Republic

Kateřina Konečná MEP, GUE/NL

Finland

Sirpa PIETIKAÏNEN MEP, EPP

France

Françoise GROSSETÊTE MEP, EPP

Italy

Elisabetta GARDINI MEP, EPP

Poland

Marek PLURA MEP, EPP

Slovenia

Tanja Fajon, S&D

 

 

 

 
 
Die Stimme der Menschen mit seltenen Krankheiten in EuropaEURORDIS Die internationale Stimme für Menschen mit seltenen KrankheitenRare Disease International Ein moderiertes mehrsprachiges Forum, das Patienten, Familien und Experten zum Erfahrungsaustausch zusammenführt. RareConnect Das Rare Barometer Programm ist eine EURORDIS-Initiative, die Umfragen durchführt und die Erfahrungen von Patienten mit seltenen Erkrankungen in Fakten und Zahlen umwandelt, die wiederum Entscheidungsträgern vermittelt werden können.Rare Barometer Eine internationale Aufklärungskampagne, die jedes Jahr am letzten Tag im Februar stattfindet. Der Tag der Seltenen Erkrankungen ist eine EURORDIS-InitiativeRare Disease Day Nehmen Sie am größten Zusammentreffen von Interessenvertretern für seltene Krankheiten in Europa teil und besuchen Sie die zweijährliche Europäische Konferenz für Seltene Krankheiten und Orphan-Produkte (ECRD). ECRD ist eine EURORDIS-InitiativeEuropean Conference on Rare Diseases