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Mai 2019

Share and protect our health data!


Rare disease patients’ preferences on data sharing and protection

A graphic report showing the results of the first International survey on rare disease perspectives on data sharing and data protection, together with recommendations derived from the survey. The survey was carried out via Rare Barometer Voices, the EURORDIS survey initiative.

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Infographic – International results

This summary infographic shows the collective results of all the 2,013 respondents from 66 countries.

Find a condensed version of the summary infographic in 23 languages below.

BulgarianHealth data infographic fact sheet
CroatianHealth data infographic fact sheet
CzechHealth data infographic fact sheet
DanishHealth data infographic fact sheet
DutchHealth data infographic fact sheet
EnglishHealth data infographic fact sheet
EstonianHealth data infographic fact sheet
FinnishHealth data infographic fact sheet
FrenchHealth data infographic fact sheet
GermanHealth data infographic fact sheet
GreekHealth data infographic fact sheet
HungarianHealth data infographic fact sheet
ItalianHealth data infographic fact sheet
LatvianHealth data infographic fact sheet
LithuanianHealth data infographic fact sheet
PolishHealth data infographic fact sheet
Portuguese Health data infographic fact sheet
RomanianHealth data infographic fact sheet
RussianHealth data infographic fact sheet
SlovakHealth data infographic fact sheet
SlovenianHealth data infographic fact sheet
SpanishHealth data infographic fact sheet
SwedishHealth data infographic fact sheet