The European Conference on Rare Diseases & Orphan Products (ECRD)

ECRDThe European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. It is a biennial event, providing the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives.

The next ECRD will take place on 15-16 May 2020 in Stockholmsmässan, Stockholm, Sweden.

The event draws together more than 800 participants from over 50 countries around the world. Leading, inspiring and engaging all stakeholders to take action, ECRD is where innovative solutions in the rare disease field are born. The Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community  – patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators.

People living with a rare disease have the right to reach their highest potential of well-being; join us in ECRD 2020 Stockholm to take part in discussions to inform and build the future ecosystem for rare disease policies and services.

 

The 9th European Conference on Rare Diseases & Orphan Products (ECRD 2018 Vienna)

Organised by EURORDIS and co-organised by Orphanet and the DIA, ECRD 2018 Vienna was the largest multi-stakeholder rare disease gathering in Europe in 2018.

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The 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016 Edinburgh)

The 8th European Conference on Rare Diseases & Orphan Products (ECRD) takes place from 26 to 28 May 2016 at the Edinburgh International Conference Centre, Edinburgh, UK.

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European Conference on Rare Diseases and Orphan Products 2012 Brussels

The 6th European Conference on Rare Diseases and Orphan Products was a resounding success gathering close to 700 people

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European Conference on Rare Diseases – ECRD 2010 Krakow

An unprecedented number of 600 participants attended the largest ever European Conference on Rare Diseases.  

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases