The European Conference on Rare Diseases & Orphan Products (ECRD)

ECRDThe ECRD is the unique platform reaching across all rare diseases and across all European countries, to bring together all stakeholders – patients’ representatives, academics, health care professionals, industry, payers, regulators and policy makers.

It is a biennial event, providing the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives.

It covers research, development of new treatments, health care, social care, information, public health and support at European, national and regional levels.

It is synergistic with national and regional conferences, enhancing efforts of all stakeholders. There is no competition with them, but efforts are complementary, fully respecting initiatives of all.

 

The 9th European Conference on Rare Diseases & Orphan Products (ECRD 2018 Vienna)

Organised by EURORDIS and co-organised by Orphanet and the DIA, ECRD 2018 Vienna was the largest multi-stakeholder rare disease gathering in Europe in 2018.

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The 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016 Edinburgh)

The 8th European Conference on Rare Diseases & Orphan Products (ECRD) takes place from 26 to 28 May 2016 at the Edinburgh International Conference Centre, Edinburgh, UK.

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European Conference on Rare Diseases and Orphan Products 2012 Brussels

The 6th European Conference on Rare Diseases and Orphan Products was a resounding success gathering close to 700 people

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European Conference on Rare Diseases – ECRD 2010 Krakow

An unprecedented number of 600 participants attended the largest ever European Conference on Rare Diseases.  

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases