The 7th European Conference on Rare Diseases & Orphan Products (ECRD 2014 Berlin)

ecrd 2014 Berlin

The 7th European Conference on Rare Diseases & Orphan Products (ECRD) took place from 8 to 10 May 2014 at Andel’s Hotel Berlin, Germany.

For more information about ECRD 2014 Berlin, visit the official conference website: or see the #ECRDBerlin Twitter wall.

Motto of the European Conference on Rare Diseases & Orphan Products (ECRD)

  • The ECRD is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders – patients’ representatives, academics, health care professionals, industry, payers, regulators and policy makers.
  • It is a biennial event, providing the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives.
  • It covers research, development of new treatments, health care, social care, information, public health and support at European, national and regional levels.
  • It is synergistic with national and regional conferences, enhancing efforts of all stakeholders. There is no competition with them, but efforts are complementary, fully respecting initiatives of all.

Official Conference Partners of the ECRD 2014 Berlin 

EURORDIS: Conference organiser
DIA: Conference co-organiser

ACHSE: German National Alliance for Chronic Rare Diseases
CORD : Canadian Organization for Rare Disorders
EFIM: European Federation of Internal Medicine
EMA: European Medicines Agency (in particular the COMP)
ESHG: European Society of Human Genetics
EUCERD: European Union Committee of Experts on Rare Diseases
EuropaBio-EBE: European Biopharmaceutical Enterprises
NORD: National Organization for Rare Disorders USA
Orphanet: Reference portal for expert validated information on rare diseases and orphan drugs

With the support of:
AFM Telethon Executive Agency for Health & Consumers

Page created: 17/05/2013
Page last updated: 06/11/2014
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases