Available in French, German, Spanish, Italian, Portuguese and Russian.

Sign up in the box on the right to receive our eNews every two weeks, as well as information about our activities and fundraising.

Each eNews features information on: rare disease events/ awareness days around the world, RareConnect communities, national rare disease plans, EURORDIS initiatives such as Rare Disease Day, orphan drug designations and marketing authorisations, and also includes stories from people living with a rare disease and videos via EURORDIS TV.

EURORDIS Member News

If you are from a EURORDIS member organisation and would like to receive our monthly Member News please email anja.helm@eurordis.org.