Fact Sheet and Case Studies

Consult our Fact Sheet and Case Studies to learn more about Adapted Housing Services and well established AHS across Europe.

Adapted Housing for Rare Diseases

Adapted Housing Services represent a particular type of service, often associated with multiple disabilities. Sometimes called ‘therapeutic apartments’, these services allow people living with rare diseases to develop and enjoy some level of autonomy by living within the comfort of their own home, alone or with peers, assisted by supportive staff, rather than being placed in an institution.
Download the Fact Sheet.

 

Case Study Presentations

2013

Prader Willi Group Homes GermanyPrader Willi Group Homes, Germany
Norbert Hödebeck-Stuntebeck, Diakonische Stiftung Wittekindshof, Germany
EURORDIS Membership Meeting 2013 Dubrovnik, Workshop 6: Specialised Social Services: need, policy, case studies

2012

Prader Willi Group Homes DenmarkPrader Willi Group Homes, Denmark
Susanne Blichfeldt, Pediatric Consultant, Danish Prader Willi Sydrome Association, Denmark
EUCERD Joint-Action Workshop on “Guiding Principles for Specialised Social Services”, 2012, Romania

Page created: 15/05/2013
Page last updated: 19/06/2013
 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases