ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

 
• Ruby Members
   
Actelion Website Alexion Pharmaceuticals Inc. CLS Behring Novartis Pharmaceuticals
Pfizer Roche Genzyme Takeda
       
• Emerald Members
   
Akcea Alnylam Akari Amicus Therapeutics

ArgenX

Audentes AvroBio Biogen
Biomarin Bluebird Bio Boehringer Ingelheim GmbH BMS
Chiesi Farmaceutici SpA Cytokinetics Gilead Hansa Medical
Horizon therapeutics insmed Illumina ipsen
KYOWA KIRIN LEO PHARMA MSD Europe Parexel
PTC Therapeutics SAREPTA Therapeutics Swedish Orphan International UCB

Vertex

 

 
• Sapphire Members
   
Abeona Aeglea Agios Agios
Avexis Bayer Schering Pharma AG Biopontis Alliance BridgeBio
Clinigen Group Cydan Dipharma Dipharma
EDITAS ENZYVANT Généthon Généthon
GRIFOLS insmed Lysogene-Q Neurogene
Orchard Therapeutics Ovid PassageBio
Recordati Rare Diseases RegenXBio Retrophin Sangamo
Spark Vifor Fresenius Medical Care  
       

 


Disclaimer
EURORDIS is not responsible for any content of other websites accessible from this page, nor does it endorse or in any respect warrant any third party products or services by virtue of any information, material or content referred to or included on, or linked from or to the EURORDIS website. EURORDIS does not endorse medicinal products, brands or health services.

 


Author: EURORDIS

Page created: 19/08/2009
Page last updated: 20/07/2020
 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases