ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

 
• Ruby Members
   
Actelion Website Alexion Pharmaceuticals Inc. CLS Behring Novartis Pharmaceuticals
Pfizer Roche Genzyme Takeda
       
• Emerald Members
   
Akcea Alnylam Akari Amicus Therapeutics

ArgenX

Audentes Biogen Biomarin
Bluebird Bio Boehringer Ingelheim GmbH BMS Chiesi Farmaceutici SpA
Cytokinetics Gilead Horizon therapeutics insmed
Illumina ipsen KYOWA KIRIN LEO PHARMA
MSD Europe PTC Therapeutics SAREPTA Therapeutics Swedish Orphan International
UCB Vertex  

 

 

 

 
• Sapphire Members
   
Abeona Aegerion Aeglea Agios
Avexis AvroBio Bayer Schering Pharma AG Biopontis Alliance
BridgeBio Clinigen Group Cydan Dipharma
Dipharma DLA Piper Dompé Group EDITAS
ENZYVANT Généthon Généthon GRIFOLS
Hansa Medical insmed Lysogene-Q
Orchard Therapeutics Ovid PassageBio Recordati Rare Diseases
RegenXBio Sangamo Spark Vifor Fresenius Medical Care
     

 


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Author: EURORDIS

Page created: 19/08/2009
Page last updated: 14/02/2020
 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases