EURORDIS Events

 

In light of the COVID-19 pandemic, all EURORDIS events will be held online until May 2021.

We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.

November 2020

Council of National Alliances & Council of European Federations meeting

25 - 27 November 2020

Online. This is a closed meeting.

For more information, please email anja.helm@eurordis.org

February 2021

Black Pearl Awards 2021

24 February 2021

Online. Public registration coming soon!

For more information please see the Black Pearl Awards website or email martina.bergna@eurordis.org.

 

Rare Disease Week

22 - 25 February 2021

Online. This is a closed event for the accepted applicants from the Council of National Alliance members.

For more information please see here, or email kostas.aligiannis@eurordis.org.

 

Rare 2030 plenary conference

23 February 2021

Online. Public registration coming soon!

For more information, please see the Rare2030 website or contact anna.kole@eurordis.org.  

 

Rare Disease Day

28 February 2021

For more information please see the Rare Disease Day website or contact erik.ruiz@eurordis.org.

March 2021

EURORDIS Round Table of Companies

Date to be confirmed.

Online. This is a closed event for members of ERTC.

For more information, please contact celine.schwob@eurordis.org.

May 2021

EURORDIS Membership Meeting

12 – 14 May 2021

Online. This is a closed event for EURORDIS members.

June 2021

EURORDIS General Assembly

17 June 2021

Online. This is a closed event for EURORDIS members.

June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June

Nice, France

Please contact martina.bergna@eurordis.org for more information.

 

 

Page created: 10/04/2015
Page last updated: 23/10/2020
 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases