EURORDIS Events
In light of the COVID-19 pandemic, all EURORDIS events will be held online until autumn 2021.
We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.
April 2021
CNA workshop
29 April 2021, online
Closed event for CNA members only. For more information, please contact Anja Helm.
May 2021
EURORDIS Membership Meeting
12 – 14 May 2021
Online.
EURORDIS represents 962 rare disease patient organisations in 73 countries. EURORDIS Membership Meeting is an excellent opportunity for patient organisations to meet other patient advocates, learn from the best in the rare disease community, and get exposed to the latest developments in rare disease advocacy.
Learn more here.
June 2021
EURORDIS General Assembly
10 June 2021
Online. This is a closed event for EURORDIS members.
Each year, EURORDIS holds the General Assembly, which serves as an opportunity to get a full view of EURORDIS' activities, exchange ideas, elect the EURORDIS Board of Directors (full members only) and understand the action plan for the following year.
June 2022
11th European Conference on Rare Diseases and Orphan Products
17 - 18 June
Nice, France
The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.
Please contact martina.bergna@eurordis.org for more information.
Page created: 10/04/2015
Page last updated: 21/04/2021