Reunión de Miembros de EURORDIS

EURORDIS General Assembly 2017

EURORDIS Membership Meeting 2017 presentations

EURORDIS Membership Meeting 2017 programme

See photos from the EURORDIS Membership Meeting 2017 in Budapest 

Each year, EURORDIS holds a general assembly attended by close to 200 of its member organisations. These events are always excellent networking opportunities for patients to meet other patient advocates from around the world. It is also a moment to get a full view of EURORDIS' activities, to exchange with staff, ask questions, elect the EURORDIS Board of Directors (full members only) and to understand the action plan for the following year.

The General Assembly is coupled every two years (odd number years) with a 2 day capacity-building workshop, specifically targeted to our members: the EURORDIS Membership Meeting (EMM).

Membership Meeting 2014

In every other year (even number years), it is held in conjunction with the European Conference on Rare Diseases and Orphan Products (ECRD), the largest multi-stakeholder conference for rare diseases in Europe. 

EURORDIS members are invited to register for ECRD to learn more about recent updates in the rare disease community and meet patients from around the world. EURORDIS members benefit from a special registration fee to the ECRD. 

EURORDIS Board elections will take place during the EURORDIS General Assembly to elect four new directors to the EURORDIS Board of Directors. If you would like to apply for a seat on the Board, please contact anja.helm@eurordis.org for more information. Please note that only representatives from full members can be candidates.

Upcoming events for EURORDIS Members:

2018

EURORDIS General Assembly, 10 May 2018, 16.30 – 18.30, Vienna.

The documents for the EURORDIS General Assembly 2018 will be posted on this page at the end of April.

European Conference on Rare Diseases and Orphan Products, 11-12 May 2018, Vienna.

 

2019

The next EURORDIS Membership meeting will take place in Bucharest in 2019.

 

More information 

 

Previous Membership Meetings:

 

 

 

Page created: 09/01/2014
Page last updated: 23/02/2018
 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades raras, Rare Diseases International es una iniciativa de EURORDISRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas, RareConnect es una iniciativa de EURORDIS RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases