International rare disease events

April 2019

Wolf-Hirschhorn Syndrome Awareness Day

16 April, more information

Undiagnosed Children's Day 2019

26 April, more information

CIOMS Open Meeting on Patient Involvement in Development and Safe Use of Medicines

30 April, Geneva, Switzerland more information

May 2019

ICHOM Conference 2019 - Redefining value through patient centered outcomes

2-3 May, Rotterdam, The Netherlands, more information

International Thalassaemia Day 2019

8 May, more information

RE(ACT) Congress 2019

8-10 May, Toronto, Canada, more information

CORD Conference – A Rare International Dialogue

10-12 May 2019, Toronto, Canada, more information

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information

Universal Health Coverage: Including Rare Diseases to leave no one behind

23 May, Geneva, Switzerland, more information

Tenth International Thyroid Awareness Week

25-31 May 2019, more information

June 2019

Gaucher Regional Meeting-Together Towards Improvement of Diagnosis, Treatment and Management

7-9 June, Struga, North Macedonia, more information

Regional Meeting on Rare Diseases Macedonia

7-9 June, Struga, North Macedonia, more information

See, Hear, Smile - Topical Meeting on Osteogenesis Imperfecta

14-15 June, Riga, Latvia, more information

NORD Summit – Living Rare, Living Stronger

21-23 June, Houston, USA, more information

July 2019

7th Annual International ECD Medical Symposium

11 July, Milan, Italy, more information

7th Annual International Patient & Family Gathering

12 July, Milan, Italy, more information.

4th World Conference on Congenital Disorders of Glycosylation (CDG)

26 - 27 July, Lisbon, Portugal, more information.

Cornelia de Lange syndrome World conference

31 July - 03 August 2019, Bad Neuenahr-Ahrweiler, Germany, more information

August 2019

Cornelia de Lange syndrome World conference

31 July - 03 August 2019, Bad Neuenahr-Ahrweiler, Germany, more information

November 2019

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information and registrations

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information

December 2019

Patient Solidarity Day 2019

7 December, more information

January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information