International rare disease events

September 2018

International month of Leukodystrophies

September, more information

78th FIP World Congress of Pharmacy and Pharmaceutical Science

2-6 September 2018, Glasgow, Scotland, more information

2018 DEBRA International Congress

7-9 September 2018, Zermatt, Switzerland, more information.

ECCO 2018

7-9 September, Vienna, Austria, more information

SPIN Sister Society Meeting at EADV Paris

12 September, Paris, France, more infromation

16th International Conference on Batten disease

12-16 September, Lodnon, UK, more information

RareX 2018

13-16 September 2018, Johannesburg, South Africa, more information.

13th International Conference on Rare Diseases and Orphan Drugs (ICORD 2018)

19-20-21 September 2018, Stockholm, Sweden, more information.

Conferencia Internacional Europa Síndrome de Phelan McDermid

21-22- 23 September 2018, Madrid, Spain, more information.

SIOPE – MAC (MEPs Against Cancer) Event

25 September 2018, Brussels, Belgium, more information

2nd XLH Symposium

26 September 2018, Athens, Greece, more information.

International Symposium of the Ehlers-Danlos Syndromes

26- 29 September 2018, Ghent, Belgium, more information.


October 2018

International Gaucher Day 2019

1 October, more information

6th International ALPE congress on Achondroplasia and other dysplasias 

12-14 October, Gijon, Spain, more information

NORD Rare Summit

15-16 October, Washington DC, USA, more information

Congresso Internazionale "Neurofibromatosis Type 1 and 2: from genetics to neurosurgery"

18-19 October, Naples, Italy, more information

European Tuberous Sclerosis Complex Association DEA Meeting 2018

19-20 October, Leuven, Belgium, more information

The First International Symposium on PSP & CBD

25-26 October, London, UK, ticket information  and more information


November 2018

World Orphan Drug Congress 2018

6-8 November, Barcelona, Spain, more information

Keystone Symposia – From Rare to Care: Discovery, Modeling and Translation of Rare Diseases

11-14 November, Vienna, Austria, more information

FRT — Fondation René Touraine Scientific Meeting 2018 - The role of the extracellular matrix in skin physiology and pathology

16 November, Paris, France, more information

RAREfest 2018

30 November - 1 December, Cambridge, UK, more information


December 2018

International Neurology Conference

3-5 December, Valencia, Spain, more information

World Congress on Rare Diseases

5-7 December,  Dubai, UAE, more information.


March 2019

24th Congress of the EAHP

27-29 March, Barcelona, Spain, more information


May 2019

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information


January 2020

1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

 

Page created: 03/12/2009
Page last updated: 10/09/2018
 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades raras, Rare Diseases International es una iniciativa de EURORDISRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases