International rare disease events

 


April 2018

The European Ehlers-Danlos Syndromes Conference

6-7 April, Maastricht, The Netherlands more information

AKU Society 2nd International Patient Workshop

23-24 April 2018, Liverpool, United Kingdom, more information

European Alpha-1 Awareness Day

24 April 2018, Brussels, Belgium, more information

World Orphan Drug Congress USA 2018

25-27 April 2018, Maryland, USA, more information

International Degos Disease Symposium

27 April 2018, Maryland, USA, more information


May 2018

International Workshop on Biobanking for Rare Diseases

02-03 May 2018, Izmir, Turkey, regsiter by 12 March

International Symposium on Bridging Biobanks in MENA Countries to Promote Research and Healthcare

04 May 2018, Izmir, Turkey, register by 27 April

2018 International Pemphigus and Pemphigoid Foundation (IPPF) Pre-IID Satellite Meeting: Pemphigus and Pemphigoid: A New Era of Translational and Clinical Science

15 - 16 May 2018, Florida, USA, more information.


July 2018

Radiz Rare Diseases Summer School

11-13 July 2018, Warth, Switzerland, more information

Family Conference for myotubular and centronuclear myopathy

14-15 July 2018, London, UK, more information

 


September 2018

78th FIP World Congress of Pharmacy and Pharmaceutical Science

2-6 September 2018, Glasgow, Scotland, more information


October 2018

The First International Symposium on PSP & CBD

25-26 October, London, UK, ticket information  and more information


November 2018

Keystone Symposia – From Rare to Care: Discovery, Modeling and Translation of Rare Diseases

November 11-14, Vienna, Austria, more information


May 2019

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information

 

Page created: 03/12/2009
Page last updated: 05/04/2018
 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades raras, Rare Diseases International es una iniciativa de EURORDISRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas, RareConnect es una iniciativa de EURORDIS RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases