International rare disease events

September 2018

International month of Leukodystrophies

September, more information

78th FIP World Congress of Pharmacy and Pharmaceutical Science

2-6 September 2018, Glasgow, Scotland, more information

2018 DEBRA International Congress

7-9 September 2018, Zermatt, Switzerland, more information.

ECCO 2018

7-9 September, Vienna, Austria, more information

SPIN Sister Society Meeting at EADV Paris

12 September, Paris, France, more infromation

16th International Conference on Batten disease

12-16 September, Lodnon, UK, more information

RareX 2018

13-16 September 2018, Johannesburg, South Africa, more information.

13th International Conference on Rare Diseases and Orphan Drugs (ICORD 2018)

19-20-21 September 2018, Stockholm, Sweden, more information.

Conferencia Internacional Europa Síndrome de Phelan McDermid

21-22- 23 September 2018, Madrid, Spain, more information.

SIOPE – MAC (MEPs Against Cancer) Event

25 September 2018, Brussels, Belgium, more information

2nd XLH Symposium

26 September 2018, Athens, Greece, more information.

International Symposium of the Ehlers-Danlos Syndromes

26- 29 September 2018, Ghent, Belgium, more information.

October 2018

International Gaucher Day 2019

1 October, more information

6th International ALPE congress on Achondroplasia and other dysplasias 

12-14 October, Gijon, Spain, more information

NORD Rare Summit

15-16 October, Washington DC, USA, more information

Congresso Internazionale "Neurofibromatosis Type 1 and 2: from genetics to neurosurgery"

18-19 October, Naples, Italy, more information

European Tuberous Sclerosis Complex Association DEA Meeting 2018

19-20 October, Leuven, Belgium, more information

The First International Symposium on PSP & CBD

25-26 October, London, UK, ticket information  and more information

November 2018

World Orphan Drug Congress 2018

6-8 November, Barcelona, Spain, more information

Keystone Symposia – From Rare to Care: Discovery, Modeling and Translation of Rare Diseases

11-14 November, Vienna, Austria, more information

FRT — Fondation René Touraine Scientific Meeting 2018 - The role of the extracellular matrix in skin physiology and pathology

16 November, Paris, France, more information

RAREfest 2018

30 November - 1 December, Cambridge, UK, more information

December 2018

International Neurology Conference

3-5 December, Valencia, Spain, more information

World Congress on Rare Diseases

5-7 December,  Dubai, UAE, more information.

March 2019

24th Congress of the EAHP

27-29 March, Barcelona, Spain, more information

May 2019

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information

January 2020

1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information