International rare disease events

October 2021

5th CMT awareness campaign

1 October 2021, worldwide, more information

Living with SMA: Spotlight on the policy and access environment in Europe

5 October 2021, online, more information

International Usher Info Scientific Symposium  and Patient Symposium

6 - 9 October 2021, online, more information

World MCT8-AHDS Day

8 October 2021, worldwide, more information

Global NCBRS Awareness Day

9 October 2021, worldwide, more information

DIAGNOSED BUT NOT TREATED? PRIORITIZING TIMELY CARE IN EUROPE’S CANCER PLANS

13 October 2021, online, more information

EAMDA International Conference on Neuromuscular disorders

15-16 October 2021, online, more information 

NORD Rare Summit (virtual)

18 - 19 October 2021, online, more information

Journée internationale du syndrome Phelan-mcdermid

22 October 2021, worldwide, more information

EPF Congress 2021

26 - 29 October 2021, online, more information

15th International Brain Tumour Awareness Week

30 October - 6 November 2021, worldwide, more information


November 2021

World Orphan Drug Congress Europe

15 - 18 November 2021, Sitges, Spain, more information

1st International Conference on Rare Diseases and Paediatric Research

18 - 19 November 2021, online, more information


April 2022

20th International Vasculitis and ANCA Workshop

3-6 April, Dublin, Ireland, more information


July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

Page created: 03/12/2009
Page last updated: 21/10/2021
 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases