International rare disease events

February 2019

Festival Uno Sguardo Raro

9-10 February, Rome, Italy, more information and submissions


March 2019

International Childhood Cancer Awareness Day (ICCD 2019)

6 March, Brussels, Belgium, more information

24th Congress of the EAHP

27-29 March, Barcelona, Spain, more information


April 2019

World Orphan Drug Congress USA 2019

10-12 April, Maryland, USA, more information


May 2019

ICHOM Conference 2019 - Redefining value through patient centered outcomes

2-3 May, Rotterdam, The Netherlands, more information

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information

Tenth International Thyroid Awareness Week

25-31 May 2019 more information


June 2019

See, Hear, Smile - Topical Meeting on Osteogenesis Imperfecta

14-15 June, Riga, Latvia, more information


July 2019

4th World Conference on Congenital Disorders of Glycosylation (CDG)

26 - 27 July, Lisbon, Portugal, more information.

Cornelia de Lange syndrome World conference

31 July - 03 August 2019, Bad Neuenahr-Ahrweiler, Germany, more information


August 2019

Cornelia de Lange syndrome World conference

31 July - 03 August 2019, Bad Neuenahr-Ahrweiler, Germany, more information

 


November 2019

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information and registrations

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information


December 2019

Patient Solidarity Day 2019

7 December, more information


January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

 

Page created: 03/12/2009
Page last updated: 15/02/2019
 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases