International rare disease events

November 2019

International Rare Disease Research Consortium (IRDiRC) Meeting

21-22 November, Paris, France

Next ERN-EYE workshop on gene and cell therapies and retinal implant

21 -22 November, Strasbourg, France more information

Skin appendages: Developmental and patophysiological aspects

22 November, Paris, France, more information

International conference on Quality of Life for Osteogenesis Imperfecta (OI)

22 - 25 November, Amsterdam, more information

6ème journée annuelle de la Plateforme d'expertise maladies rares Paris-Sud

29 November, Paris, France, more information

December 2019

Patient Solidarity Day 2019

7 December, more information

UHC Day: Keep the promise

12 December, more information

January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

February 2020

Rare Disease Film Festival

10 February, UK, more information

March 2020

6th RE(ACT) Congress - 4th IRDiRC Conference 2020

11-14 March, Berlin, Germany, more information

4th ISNS Middle East-North Africa Regional Meeting 

8-11 March , Limassol, Cyprus

April 2020

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

May 2020

International Huntington’s Disease Awareness month

May, worldwide, more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

9-11 May 2020, Glasgow, Scotland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland

Rare Diseases International 6th Annual Membership Meeting

19 – 20 May 2020, Geneva, Switzerland