International rare disease events

September 2019

Aortic Dissection Awareness Day

19 September 2019, worldwide, more information

7th UIA Associations Round Table Asia-Pacific

19-20 September 2019, Pattaya, Thailand, more information

Integrated Care, a Global Approach

19-20 September, Burgos, Spain, more information

China Rare Disease Summit

20-22 September, Shenzen, China, more information

UN High Level Meeting on Universal Health Coverage

23 September, New York, USA, more information

RAREsummit19

23 September, Cambridgeshire, England, more information

Conference “Autism and the Fragile X-associated Disorders"

23-24 September, Belgrade, Serbia, more information

Dravet Syndrome Conference 2019

26 September, Madrid, Spain, more information

October 2019

International Gaucher Day

1 October, more information

8th Annual Symposium on ATP1A3 in Disease 2019

3-4 October, Reykjavik, Iceland, more information

APARDO Symposium 2019

19-21 October, Taipei, Taiwan, more information coming soon.

November 2019

Innovation Bootcamp in Rare Diseases

4-5 November, Leuven, Belgium, more information

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information and registrations

The 14th Meeting of the International Conference on Rare Diseases and Orphan Drugs (ICORD)

11-13 November, Rishon Lezion, Israel, more information

EPF Congress

12-14 November, Brussels, Belgium, more information

World Orphan Drug Congress

12-14 November, Barcelona, Spain

A limited number of free passes are available for patient organisations. More info.

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information

International Rare Disease Research Consortium (IRDiRC) Meeting

21-22 November, Paris, France

Skin appendages: Developmental and patophysiological aspects

22 November, Paris, France, more information

International conference on Quality of Life for Osteogenesis Imperfecta (OI)

22 - 25 November, Amsterdam, more information

December 2019

Patient Solidarity Day 2019

7 December, more information

January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

April 2020

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

May 2020

International Huntington’s Disease Awareness month

May, worldwide, more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

9-11 May 2020, Glasgow, Scotland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland