Alain Cornet

  • Treasurer

Alain Cornet

Lupus Belgium, Belgium

e-mail: alain.cornet@eurordis.org

 

Alain was elected to the EURORDIS Board of Directors in 2020 and currently serves as Treasurer.

Alain worked as a Global Finance Executive in a large consumer goods multinational for 32 years. When his wife was diagnosed with Systemic Lupus Erythematosus in 2004, he decided to repurpose his skills towards the rare disease cause, getting involved with the lupus community as a volunteer, treasurer, and patient advocate.

He holds the position of General Secretary of Lupus Europe and is also on the Board of L'ASBL CLAIR (Contre les Affections Rhumatismales Inflammatoires) and the Patient Expertise Center (Belgium), in addition to supporting several groups on governance, finance, leadership and strategy matters.

Alain is an active ePAG advocate in ERN ReCONNET and EJP-RD WP20 on Clinical trials. He is also an alumnus of both EURORDIS Summer and Winter Schools.

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases