Anne-Laure Aslanian

  • Patient Engagement Manager Healthcare – ERN & Healthcare / European Patient Advocacy Groups

Anne-Laure Aslanian joined EURORDIS in March 2019 as Patient Engagement Manager. She is managing and supporting 8 out of the 24 European Patient Advocacy Groups (ePAGs) that were set up by EURORDIS to ensure a meaningful patient advocates’ engagement across all European Reference Networks (ERNs) activities.  Anne-Laure also leads the communication and knowledge management activities to support the 24 ePAGs’ work and facilitate exchange of good practices and access to information.

Anne-Laure has several years of experience in research and innovation project management and development of international research project proposals. Prior to joining EURORDIS, she worked for 4 years in a hospital research institute and in a biomedicine center in Barcelona to foster the participation of researchers and clinicians in research grants opportunities and to enhance their collaboration in European healthcare initiatives.

She holds a Master’s degree in European Studies and International Business Law from Aix-Marseille University (France).

She is a native French speaker, she also speaks English, Spanish, Catalan and basic Portuguese.

Telephone: +34 93 220 48 60

La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases