Clara Hervás

  • Public Affairs Manager

Clara Hervás is Public Affairs Manager at EURORDIS, based at the Brussels office.

As part of the European and international advocacy team, Clara is responsible for a range of advocacy and communication activities, including the creation of reports, research of policy issues, support to advocacy campaigns and daily monitoring of media. She is Policy Coordinator within the NGO Committee for Rare Diseases at the United Nations, and supports the advocacy work of Rare Diseases International (RDI).

Clara has previous experience working for NGOs and international organisations. She was Campaign Coordinator for a Belgian development non-profit organisation and also worked for the Information and Communication Technologies Sector Unit of the World Bank.

Clara holds a Bachelor of Arts in Human Geography from the University of Cambridge, as well as a Master of Science in Global Politics from the London School of Economics.

A Spanish national, Clara was born in Luxembourg, grew up in Belgium and moved to the United Kingdom to study. She returned to Brussels in 2016.

Her mother tongue is Spanish and she speaks fluent English and French, as well as basic Italian

Telephone: +32 2 274 06 10

La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases