Davor Duboka

  • Web Technology Manager

Davor Duboka joined EURORDIS in 2018 as Web Technology Manager.

Davor is part of the wider Communications Team where he is responsible for the technical, project and content management aspects of all EURORDIS websites. He is also responsible for providing technical support and training on other web tools and technologies to his colleagues.

Before joining EURORDIS, he was already involved in patient advocacy and held the position of Executive Director of NORBS (the Serbian National Alliance for Rare Diseases). He also worked as Sound Designer and IT Maintenance Manager at the Atelje 212 Theatre in Belgrade, Serbia.

He is a father of two boys, the elder of which is living with Gaucher disease.

He holds a degree in Automotive Engineering from the Mechanical Engineering faculty in Belgrade, Serbia, as well as a degree in Sound Design from the Faculty of Dramatic Arts in Belgrade.

A Serbian national, Davor speaks Serbian, English, French and Russian.

Telephone: +33 1 56 53 52 10
Email: davor.duboka@eurordis.org

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases