Denis Costello

  • Patient Engagement in Digital Technologies Senior Manager & Rare Connect Leader


Denis Costello joined EURORDIS in 2008 as Web Content Manager, later becoming Patient Engagement in Digital Technologies Senior Manager & Rare Connect Leader.

Denis, currently based in Barcelona, is part of the Communications team where he is responsible for the technical aspects of all EURORDIS websites and monthly electronic newsletter.

Since joining EURORDIS, he has overseen the expansion of the online presence to incorporate an international online awareness campaign for Rare Disease Day,, a dedicated rare disease social network, and for key opinion leaders in orphan drug and rare disease policy.

Denis is also a regular speaker at international events and conferences relating to the use of online communications by patient organisations.

With over ten years experience in media production and web development, Denis has worked in Irish national radio and as a web developer in Barcelona, Dublin and Paris.

He holds a degree in Music and French from the National University of Ireland, Maynooth as well as a further degree in Multimedia Technologies from Trinity College Dublin.

An Irish national, Denis speaks English, French and Spanish.

Telephone: +34 932 20 34 78

La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases