Fabrizia Bignami

Fabrizia Bignami holds a PhD in Cellular and Developmental Biology from the Department of Cellular Biology at La Sapienza University-Rome, Italy. She has also completed a postdoctoral fellowship at the CNRS Laboratory for Cellular Biology of Membranes, Jacques Monod Institute-Paris, France.

Fabrizia was trained in in Statistics Applied to Medicine (CESAM), Université Paris-VI, and Health Technology Assessment at the UMIT, Tyrol Austria.

Between 2000 and 2002, she was Project Manager for Cell Therapies at the Scientific Department of the French Association against Myopathies (Association Française contre les Myopathies, AFM-Téléthon), France.

In 2002, Fabriziabecame Therapeutic Development Director at EURORDIS, Paris, France, in charge of all activities relating to research and development of medicinal products for rare diseases in Europe.

In particular, she was permanent observer and patient representatives’ supporter at the Committee for Orphan Medicinal Products (COMP), EMA from 2002 to 2009 as in 2009 she was nominated member of the Committee for Advanced Therapies (CAT), EMA.

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La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases