Edith Gross

  • Health and Social Science Senior Project Manager

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Edith (Sky) Gross joined EURORDIS in October 2021 as Health and Social Science Senior Project Manager. She is currently representing EURORDIS in the 5 years long European 'Innovative Medicine Initiative' project « Screen4Care » aimed at utilising advanced technologies to shorten the path to diagnosis for rare disease patients.

Edith holds a PhD in medical sociology along with a business degree, and has a rich research background, including four postdoctoral fellowships and more than a dozen peer-reviewed publications in different areas at the intersection of medicine, ethics and social sciences. Her professional background includes a position as director of Social Sciences and Humanities at the Israeli Ministry of Science and Technology, and as Biomedical Director at the Victoria (Australia) Trade and Investment Office. She also directed the Israeli National Council for the Advancement of Women in Science and Technology.

 

Telephone: +33 7 53 72 92 88
Email: edith.gross@eurordis.org

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases