Erik Ruiz

  • Communications Junior Manager

Erik plays a key role in creating and disseminating digital content for both Rare Disease Day and EURORDIS channels.

He coordinates the co-creation of the campaign with the 60+ Rare Disease Day National Alliance partners and relays campaign information to the global community. He also provides the link with the international advocacy team to create capacity-building materials for patient advocates involved in Rare Disease Day.

Before joining EURORDIS, Erik was part of the Strategy and Innovation Unit of the European Parliament’s Directorate-General for Communication (DG COMM). He also worked for 3 years as Communications Officer for an NGO focused on EU-Latin American affairs in Brussels and for one year as a communication consultant in a consultancy specialised in healthcare communications in Bilbao. During this time he was also a correspondent of Diario Médico in the Basque Country.

Erik holds a Bachelor Degree in Communication from the University of the Basque Country (UPV/EHU), a Master’s degree in Political Science from the Université Libre de Bruxelles and a Postgraduate degree in European Political Economy and Innovation from the London School of Economics and Political Science (LSE).

Erik is a native Spanish speaker and also speaks Basque, English and French as well as some Dutch. 

Telephone: +33 1 56 53 52 69

La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases