Gulcin Gumus

  • Research and Policy Project Manager

Gulcin Gumus

Gulcin Gumus joined EURORDIS in June 2018 as Research and Policy Project Manager. She is responsable for supporting project management of the EU‐funded clinical research and research infrastructure projects as well as assisting the Scientific Director and the Public Affairs Team on public affairs and advocacy topics relevant to rare disease research & policy.

Before joining EURORDIS, Gulcin was involved in in several national and European non-profit organisations, coordinating projects about social entrepreneurship and education. She is also a youth facilitator in peer training addressing anti-discrimination.

Gulcin did her Bachelor studies in Molecular Biology and Genetics. She holds a PhD in Fetal and Perinatal Medicine from the University of Barcelona where she worked on research projects by developing pre-clinical therapies for rare prenatal and childhood diseases.

Gulcin speaks English, Spanish, Turkish and some Italian.

Telephone: +34 93 220 48 60
Email: gulcin.gumus@eurordis.org

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases