Lara Chappell

  • Communications Director, Head of Communications & Development

Lara Chappell

Lara Chappell joined EURORDIS in December 2011 and was named Communications Director, Head of Communications and Development in January 2018.

Lara is responsible for EURORDIS' external communications and development strategy as well as overseeing the management of events, staff and budget. She makes the link between these three activities internally. She also manages EURORDIS' branding, web technology and in-kind partnerships.

In her previous role as Communications Director for EURORDIS Lara oversaw the growth of the international Rare Disease Day campaign to more than 90 countries in 2018. People were invited to #ShowYourRare and paint their faces to celebrate the day.

Previously, Lara was the spokesperson in France for the US National Basketball Association (NBA), managing press relations and events. She continued to work for the NBA focusing on marketing sponsorships and then managing a grass-roots event in schools throughout Europe.
She holds a Bachelor of Arts in French Culture with a minor in Mathematics from the University of Pennsylvania as well as a Master of Business Administration from HEC (École des hautes études commerciales de Paris) in France.

A dual French-American national, Lara grew up in the US state of New Jersey and has lived in Paris since 1991.

A native English speaker, she is fluent in French.

Lara is married with two sons, the elder of whom is living with Angelman Syndrome.

Telephone: +33 1 56 53 52 60
Email: lara.chappell@eurordis.org

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases