Lenja Wiehe

  • Patient Engagement Manager Healthcare – ERN & Healthcare / European Patient Advocacy Groups

Lenja Wiehe

Lenja Wiehe joined EURORDIS in 2014 as part of the resource development team. Since 2016, she has managed the 24 European Patient Advocacy Groups (ePAGs) that were set up by EURORDIS to ensure a meaningful patient advocates’ engagement across all European Reference Networks (ERNs) activities.  As such, Lenja is responsible for engaging patient organisations in the development, programming and evaluation of ERNs.

Prior to joining EURORDIS, Lenja was involved in several community health projects and gained experience in health systems management working with the German International Cooperation (GIZ) and the Emergency Humanitarian Action Unit of the World Health Organization in Indonesia, the Monitoring & Evaluation Unit of UN Women in India and the Women and Health Alliance International (WAHA) in France. In addition, she has worked as a freelance journalist for various film production agencies in France and Germany.

Lenja holds a Master in Southeast Asian Studies and Political Science from the University of Bonn and a Master of Public Health from the EHESP French School of Public Health.

Lenja speaks German, English and French.

Telephone: + 34 932 20 44 01
Email: lenja.wiehe@eurordis.org

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases