Martina Bergna

  • Events Manager


Martina Bergna joined EURORDIS in September 2018.

As part of the Communications and Development team, Martina provides support in the development, registration management, organisation, promotion and fundraising of EURORDIS’ major flagship events.

This includes the European Conference on Rare Diseases and Orphan Products (ECRD), the EURORDIS Black Pearl Awards, the Multi-Stakeholder Symposium on Improving Patients' Access to Rare Disease Therapies and the ERTC (EURORDIS Round Table of Companies) workshops.

Martina is responsible for developing digital communications plans for EURORDIS' major events and for the editorial and design of targeted communications materials. She oversees the design and content of the and websites. Martina also manages the EURORDIS Photo Contest, an international campaign which aims to raise awareness about the daily lives of people living with a rare disease.

Prior to joining EURORDIS, Martina worked for 4 years in event operations, management and communications, both in the private and public sector, including work experience for the European Parliament, the European Commission and Oxfam Magasins du Monde.

Martina holds a Bachelor’s degree in Communication and Translation from IULM University in Milan and a Master’s degree in International Relations from ULB University in Brussels.

Martina speaks Italian, English and French as well as some Spanish and basic Portuguese.

Telephone: +33 1 56 53 52 66

La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases