Matteo Scarabelli

  • Patient Engagement Manager - HTA

Matteo Scarabelli

Matteo Scarabelli joined EURORDIS in 2017 as Patient Engagement Manager in HTA.

Prior to joining EURORDIS, Matteo received an International Ph.D. degree in Philosophy at Université Paris 1 Panthéon-Sorbonne and the University of Milan. Immediately after his Ph.D. he actively cooperated in the foundation of a help-desk for refugees and asylum seekers in Paris, led by a small association. After an internship at the European Parliament as an MEP’s Assistant, his most recent experience was to run the Brussels office of an Italian think tank where he participated in research on health technology assessment and organised several events.

At EURORDIS, working closely to the Director of Information & Access to Therapies & Health Policy Advisor, François Houÿez, Matteo is in charge of dealing with all matters concerning Health Technology Assessment (HTA) at both a national and especially a European level, with the aim of strengthening the engagement of patients in HTA and contributing to the shaping of EU policy in this domain.

Matteo speaks English, French, and Italian.

Telephone: +33 1 56 53 13 64
Email: matteo.scarabelli@eurordis.org

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases