Michael Wilbur

  • Chief Operating Officer

Michael WILBUR

Michael joined EURORDIS in March 2019 as Chief Operating Officer, based in the Paris office.

As COO he is responsible for the oversight, support, coordination, development and scale–up of EURORDIS Operations, Programmes and Projects covering the following areas: research infrastructures and clinical research; therapeutic development, information and access to medicines; healthcare and European Reference Networks; social services and integrated care; online patient communities and social media; patient advocates’ capacity building; information and communication; and resource development. His role is to ensure that these activities are strategically meaningful, impactful and cost-effective; positioned within the mission, values and strategy of EURORDIS and involving the right partners and stakeholders.

Before joining EURORDIS, Michael worked in Patient Safety for NHS England/NHS Improvement and the NHS National Patient Safety Agency in the United Kingdom.

Michael holds a Master’s degree from King’s College London and BA from Boston College.

Telephone: +33 1 56 53 52 67
Email: michael.wilbur@eurordis.org

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases