Paloma Tejada

  • Rare Diseases International Director


Paloma Tejada joined EURORDIS – Rare Diseases Europe in 2007 as head of Communications. She launched the first Rare Disease Day campaign in 2008, growing it from a European patients’ awareness day to an international campaign that mobilises all stakeholders in more than 90 countries today.

In 2014, Paloma was trusted with the launch and development of Rare Disease International – a EURORDIS-led initiative to build a global alliance of rare disease patients across the world to speak with one voice. In 2017, she became Director of Rare Diseases
International, which is now a legally- incorporated international NGO.

Paloma has extensive experience working for not-for-profit and non-governmental organisations in Europe, America and Asia. Previously she worked for worked for Médecins du Monde as a Programme Coordinator for their international HIV/AIDS network. She also worked for Chemonics International, a consulting firm that manages development projects for the World Bank. She spent a year in New Delhi where she managed donor relations for a water and sanitation programme in Tibetan refugee settlements.

After obtaining a Bachelor of Arts in Communications from the American University in Washington DC, she went on to complete a Master of Science in Development Management at the London School of Economics.

A dual Peruvian-French national, she grew up in Lima, lived in Washington DC, London and Paris. She has been based in Geneva since 2014.

She is fluent in English, French and Spanish.

Telephone: +41 763 60 47 25

La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases