Josep Torrent-Farnell

Dr. Josep Torrent-Farnell. PhD in Medicine and Surgery and Bachelor of Pharmacy, specialist in internal medicine and clinical pharmacology. Head of the medicine division of the CatSalut, of the Generalitat de Catalunya (May 2016). Full Professor of the Department of Clinical and Therapeutic Pharmacology of the Universitat Autònoma de Barcelona and Head of Section of the Pharmacology Service of the Santa Creu i Sant Pau Hospital. First elected President (2000-2007) and member of the Committee for Orphan Medicinal Products and the Scientific Advisory Committee of the European Agency (2009-2012), member of the Rare Diseases Task Force. EURORDIS expert on research and training programs. He also was a Public Health Executive Agency for the European Union (2006-2010). Expert in the National Strategy for Rare Diseases (2007-2012), member of the Advisory Committee on Minority Diseases (CAMM) and chair of the High Complexity Pharmacological Treatment Advisory Council, Catalan Health Service (2010-2016). Chairman of the Scientific Committee of the CIBER Rare Diseases, President of the Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC). He is an expert from the Conseil Scientifique de l'Agence Nationale de Sécurité du Médecament et des Produits de Santé de France (2010-2016). Member of the Ethics Committee of Farmaindustria (2001-2016). Coordinator for the creation and first executive director of the Spanish Medicines Agency (1998-2000) and Head of the innovative drugs sector of the European Agency (1994-1998). Order of the Civil Order of the Ministry of Health (2009). Special distinction of the Association of Patients of Rare Diseases of the United States (NORD, 2005). Special Distinction to Leadership in Rare Diseases in Europe by the European Federation of Rare Disease Patients (EURORDIS, 2015).

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases