18th Workshop, Brussels: "Corporate Responsibility in Improving Access to Orphan Medicinal Products"

18th Workshop of the EURORDIS Round Table of Companies

Corporate Responsibility in Improving Access to Orphan Medicinal Products

 

February 27th, 2013

Brussels, Belgium

This Workshop focused on Corporate Responsibility in the context of the current economic situation across Europe, taking into consideration the national plans for rare diseases that EU Member States are urged to develop by the end of 2013. Bringing together more than 80 participants from 11 countries in the European Union, the USA and Canada, the workshop featured the participation of Thomas Heynisch, (European Commission, DG Enterprise), Johan van Calster, (former Head of Belgian Medicines Agency), Richard Bergström  (Director General, European Federation of Pharmaceutical Industry Association) and other stakeholders. The daylong event moved forward understanding of the complex issues involved in the process of fostering more equitable and rapid medicinal product access for people living with a rare disease across Europe.

Participants: 80

Programme 

Concept Paper 

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases