20th ERTC Workshop, Brussels: "Unlocking Europe's Potential in Rare Disease Therapies”

20th Workshop of the EURORDIS Round Table of Companies

"Unlocking Europe's Potential in Rare Disease Therapies”

 

February 26th, 2014

A 10 Year Anniversary Workshop!

Brussels, Belgium
 

Birthday cake

The 20th ERTC workshop explored the ambitious overarching theme of “Unlocking Europe’s Potential in Rare Disease Therapies” between now and 2020 - celebrating ten years of dialogue and collaborative efforts between patient advocates, industry, regulatory agencies and national competent authorities to move forward the development of treatments for rare diseases. The focus was on the research agenda of the new EU Framework Programme Horizon 2020 and the synergies between the European Medicines Agency, the Innovative Medicines Initiative 2 (2014-2020), industry, patients, and science, in order to make sure that the momentum is sustained and new opportunities are optimised. The 90 participants discussed how each partner has a vital role to play in paving the way for new treatments development – industry, policy-makers, regulators, patients, and academia. Over the past ten years, the twice yearly round tables have regularly tackled the key issues that can unblock bottlenecks and advance real solutions for more, safe, efficient, effective, affordable, accessible therapy development.

Participants: 90

Agenda 
Concept Paper 

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases