EUROPLAN – EURORDIS Tool Kit for National Conferences

This tool kit contains information and documents intended for organisers of EUROPLAN National Conferences aimed at promoting the adoption of policy measures for people living with rare diseases. These documents provide guidance to adopt common conference format and content.



A process more than a project


Synthesis report and national reports

Learn about the outcomes of each EUROPLAN National Conference held in 2010 and 2011.


EUROPLAN Flickr Gallery

Discover the pictures of the EUROPLAN national conferences aimed at promoting a national plan for rare diseases (Flickr Gallery).

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases