ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

• Ruby Members
Alexion Pharmaceuticals Inc. CLS Behring Actelion Website Novartis Pharmaceuticals
Pfizer Roche Genzyme Takeda
• Emerald Members
Alnylam Akari Amicus Therapeutics ArgenX
Audentes Biocryst Biogen Biomarin
Bluebird Bio Blueprint Boehringer Ingelheim GmbH BMS
Chiesi Farmaceutici SpA Cytokinetics Daiichi-Sankyo Editas Medecine
Gilead Hansa Medical Horizon therapeutics insmed
Illumina Ionis ipsen KYOWA KIRIN
LEO PHARMA MSD Europe NovoNordisk Orchard Therapeutics
Parexel PTC Therapeutics Santen SAREPTA Therapeutics


Swedish Orphan International

UCB Ultragenyx
Vertex Vifor Fresenius Medical Care    
• Sapphire Members
Aeglea Agios Alira Bayer Schering Pharma AG
Bionical EMAS BridgeBio Camurus Clinigen Group
ENZYVANT Généthon Généthon GRIFOLS
HealX insmed Lysogene-Q Jazz
Lundbeck Lysogene-Q Mereo Biopharma Neurogene
Open App Ovid Passage Bio ProQR
RegenXBio Sangamo Spark Spark


EURORDIS is not responsible for any content of other websites accessible from this page, nor does it endorse or in any respect warrant any third party products or services by virtue of any information, material or content referred to or included on, or linked from or to the EURORDIS website. EURORDIS does not endorse medicinal products, brands or health services.



Page created: 19/08/2009
Page last updated: 28/06/2022
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases