ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

• Ruby Members
Actelion Website Alexion Pharmaceuticals Inc. BMS CLS Behring
Novartis Pharmaceuticals Pfizer PTC Therapeutics Roche
Genzyme Takeda Taysha  
• Emerald Members
Akcea Alnylam Akari Amicus Therapeutics


Audentes AvroBio Biogen
Biomarin Bluebird Bio Blueprint Boehringer Ingelheim GmbH
Chiesi Farmaceutici SpA Cytokinetics GBT Gilead
Hansa Medical Horizon therapeutics insmed Illumina
Orchard Therapeutics Parexel Santen SAREPTA Therapeutics
Swedish Orphan International UCB Vertex Vifor Fresenius Medical Care



• Sapphire Members
Abeona Aeglea Agios Alira
Amryt Amryt Avexis Bayer Schering Pharma AG
BridgeBio Clinigen Group Cydan Dipharma
ENZYVANT Généthon Généthon GRIFOLS
HealX insmed Lysogene-Q Jazz
Lundbeck Lysogene-Q Mereo Biopharma Neurogene
Ovid PassageBio RegenXBio Retrophin
Sangamo Spark Spark


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Page created: 19/08/2009
Page last updated: 04/05/2021
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases