ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

 
• Ruby Members
   
Actelion Website Celgene CLS Behring Novartis Pharmaceuticals
Pfizer Roche Genzyme Takeda
       
• Emerald Members
   
Akcea Alexion Pharmaceuticals Inc. Alnylam Akari

Amicus Therapeutics

ArgenX

Audentes Biogen

Biomarin

Bluebird Bio Boehringer Ingelheim GmbH BMS
Chiesi Farmaceutici SpA Cytokinetics Gilead Hansa Medical
Horizon Pharma USA insmed Illumina ipsen
KYOWA KIRIN LEO PHARMA MSD Europe Orphan Europe
PTC Therapeutics SAREPTA Therapeutics Swedish Orphan International INC Research/inventive Health
Vertex      

 

 

 

 
• Sapphire Members
   
Aegerion Agios Avexis Bayer Schering Pharma AG
Biopontis Alliance BridgeBio Clementia Clinigen Group
Cydan Dipharma DLA Piper Dompé Group
EDITAS ENZYVANT Généthon Généthon
GRIFOLS inceptua insmed
Leadiant biosciences Lysogene-Q Mereobiopharma  op2drugs
Orchard Therapeutics Ovid RegenXBio
Sangamo Santhera Spark UCB
Ultragenyx Vifor Fresenius Medical Care
     

* In-Kind member acting as liaison with NORD Corporate Council in the US and in recognition of support of the ERTC workshop dinners


Disclaimer
EURORDIS is not responsible for any content of other websites accessible from this page, nor does it endorse or in any respect warrant any third party products or services by virtue of any information, material or content referred to or included on, or linked from or to the EURORDIS website. EURORDIS does not endorse medicinal products, brands or health services.

 


Author: EURORDIS

Page created: 19/08/2009
Page last updated: 01/03/2019
 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases