In light of the COVID-19 pandemic, all EURORDIS events will be held online until autumn 2021.

We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.

October 2021

EURORDIS webinar on the Rare2030 survey findings

18 October 2021, online

More information

32nd EURORDIS Round Table of Companies Workshop
"The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines"

20 - 21 October 2021, online

Closed event for ERTC members. For more information, please contact Celine Schwob.

November 2021

CNA/CEF meeting

8 - 10 November 2021, online

Closed event for CNA and CEF members.

February 2022

Black Pearl Awards 2022

8 February 2022

More information

June 2022

11th European Conference on Rare Diseases and Orphan Products

27 June to 1 July 2022


The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

Please contact for more information.



May 2023

EMM 2023

17 - 18 June 2023, Stockholm, Sweden

Page created: 10/04/2015
Page last updated: 05/10/2021
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases