International rare disease events

September 2019

Aortic Dissection Awareness Day

19 September 2019, worldwide, more information

7th UIA Associations Round Table Asia-Pacific

19-20 September 2019, Pattaya, Thailand, more information

Integrated Care, a Global Approach

19-20 September, Burgos, Spain, more information

China Rare Disease Summit

20-22 September, Shenzen, China, more information

UN High Level Meeting on Universal Health Coverage

23 September, New York, USA, more information

RAREsummit19

23 September, Cambridgeshire, England, more information

Conference “Autism and the Fragile X-associated Disorders"

23-24 September, Belgrade, Serbia, more information

Dravet Syndrome Conference 2019

26 September, Madrid, Spain, more information


October 2019

International Gaucher Day

1 October, more information

8th Annual Symposium on ATP1A3 in Disease 2019

3-4 October, Reykjavik, Iceland, more information

APARDO Symposium 2019

19-21 October, Taipei, Taiwan, more information coming soon.


November 2019

Innovation Bootcamp in Rare Diseases

4-5 November, Leuven, Belgium, more information

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information and registrations

The 14th Meeting of the International Conference on Rare Diseases and Orphan Drugs (ICORD)

11-13 November, Rishon Lezion, Israel, more information

EPF Congress

12-14 November, Brussels, Belgium, more information

World Orphan Drug Congress

12-14 November, Barcelona, Spain

A limited number of free passes are available for patient organisations. More info.

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information

International Rare Disease Research Consortium (IRDiRC) Meeting

21-22 November, Paris, France

Skin appendages: Developmental and patophysiological aspects

22 November, Paris, France, more information

International conference on Quality of Life for Osteogenesis Imperfecta (OI)

22 - 25 November, Amsterdam, more information


December 2019

Patient Solidarity Day 2019

7 December, more information


January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information


April 2020

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information


May 2020

International Huntington’s Disease Awareness month

May, worldwide, more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

9-11 May 2020, Glasgow, Scotland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland

Page created: 03/12/2009
Page last updated: 16/09/2019
 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases