International rare disease events

July 2020

3rd EURO-NMD translational Research Summer School, edition 2020

6-10 July, Lieden, Netherlands, more information Event postponed to July 2021 due to COVID-19, exact dates tbc

Soft Bones 2020 Virtual Patient Meeting

11 July, online, more information

First Virtual Congenital Hyperinsulinism Family Conference

11-12 July, online, more information

August 2020

World Orphan Drug Congress

24-26 August 2020, Oxon Hill, Maryland, USA, more information

46th Annual Meeting of the European Society for Blood and Marrow Transplantation

30 August – 2 September 2020, Madrid, Spain, more information

September 2020

14th International Conference on Osteogenesis Imperfecta (OI2020)

5-8 September 2020, Sheffield, UK, more information

World Duchenne Awareness Day (WDAD)

7 September 2020, worldwide, more information

c4c Multi-Stakeholder Meeting on Child Psychiatry

10-11 September 2020, Brussels, Belgium, more information

IAPO 9th Global Patients Congress

16-18 September 2020, Edinburgh, Scotland, more information

World Patient Safety Day

17 September 2020, worldwide, more information

The ‘’3rd Pan-Asian Regional Conference on Thalassaemia & other Haemoglobinopathies’’ 

Dates to be confirmed, New Delhi, India more information

October 2020

7th international Symposium on NBIA & related disorders

1-3 October, Lausanne, Switzerland, more information

NORD Rare Diseases and Orphan Products Breakthrough Summit

8-9 October 2020, online, more information

4th European Working Group on Gaucher Disease Congress

11 - 14 October 2020 in Leiden, The Netherlands, more information

The 2020 International Brain Tumour Awareness Week

24-31 October, worldwide, more information

34th E.S.PKU Conference 2020

29 October - 1 November, Madrid, Spain, more information

November 2020

ERN CRANIO annual meeting 2020

13-14 September 2020, Barcelona, Spain, more information

THE INTERNATIONAL SYNGAP1 CONFERENCE AND FDA PFDD SYNGAP1: Patient Voices

19 November 2020, Rockville, Maryland, USA, more information

EMSP 2020 Annual Conference

20-21 November 2020, Madrid, Spain, more information

The International Netherton Conference

26-27 November, Rotterdam, Netherlands, more information

The ‘’15th International Conference on Thalassaemia & other Haemoglobinopathies’’  & the ‘’17th TIF Conference for Patients & Parents’’  

Dates to be confirmed, Thessaloniki, Greece more information

December 2020

Duchenne Patient Academy (DPA)

December 2020, Athens, more information

March 2021

The ‘’3rd Pan –Middle East Conference on  Haemoglobinopathies’’

Dates to be confirmed, United Arab Emirates more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

12 - 14 March 2021, Glasgow, Scotland, more information