International rare disease events

September 2018

International month of Leukodystrophies

September, more information

78th FIP World Congress of Pharmacy and Pharmaceutical Science

2-6 September 2018, Glasgow, Scotland, more information

2018 DEBRA International Congress

7-9 September 2018, Zermatt, Switzerland, more information.

ECCO 2018

7-9 September, Vienna, Austria, more information

SPIN Sister Society Meeting at EADV Paris

12 September, Paris, France, more infromation

16th International Conference on Batten disease

12-16 September, Lodnon, UK, more information

RareX 2018

13-16 September 2018, Johannesburg, South Africa, more information.

13th International Conference on Rare Diseases and Orphan Drugs (ICORD 2018)

19-20-21 September 2018, Stockholm, Sweden, more information.

Conferencia Internacional Europa Síndrome de Phelan McDermid

21-22- 23 September 2018, Madrid, Spain, more information.

SIOPE – MAC (MEPs Against Cancer) Event

25 September 2018, Brussels, Belgium, more information

2nd XLH Symposium

26 September 2018, Athens, Greece, more information.

International Symposium of the Ehlers-Danlos Syndromes

26- 29 September 2018, Ghent, Belgium, more information.


October 2018

International Gaucher Day 2019

1 October, more information

6th International ALPE congress on Achondroplasia and other dysplasias 

12-14 October, Gijon, Spain, more information

NORD Rare Summit

15-16 October, Washington DC, USA, more information

Congresso Internazionale "Neurofibromatosis Type 1 and 2: from genetics to neurosurgery"

18-19 October, Naples, Italy, more information

European Tuberous Sclerosis Complex Association DEA Meeting 2018

19-20 October, Leuven, Belgium, more information

The First International Symposium on PSP & CBD

25-26 October, London, UK, ticket information  and more information


November 2018

World Orphan Drug Congress 2018

6-8 November, Barcelona, Spain, more information

Keystone Symposia – From Rare to Care: Discovery, Modeling and Translation of Rare Diseases

11-14 November, Vienna, Austria, more information

FRT — Fondation René Touraine Scientific Meeting 2018 - The role of the extracellular matrix in skin physiology and pathology

16 November, Paris, France, more information

RAREfest 2018

30 November - 1 December, Cambridge, UK, more information


December 2018

International Neurology Conference

3-5 December, Valencia, Spain, more information

World Congress on Rare Diseases

5-7 December,  Dubai, UAE, more information.


March 2019

24th Congress of the EAHP

27-29 March, Barcelona, Spain, more information


May 2019

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information


January 2020

1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

 

Page created: 03/12/2009
Page last updated: 10/09/2018
 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rare, Rare Diseases International est une initiative d'EURORDISRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases