International rare disease events

May 2019

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information

Universal Health Coverage: Including Rare Diseases to leave no one behind

23 May, Geneva, Switzerland, more information

Tenth International Thyroid Awareness Week

25-31 May 2019, more information

June 2019

Gaucher Regional Meeting-Together Towards Improvement of Diagnosis, Treatment and Management

7-9 June, Struga, North Macedonia, more information

Regional Meeting on Rare Diseases Macedonia

7-9 June, Struga, North Macedonia, more information

See, Hear, Smile - Topical Meeting on Osteogenesis Imperfecta

14-15 June, Riga, Latvia, more information

NORD Summit – Living Rare, Living Stronger

21-23 June, Houston, USA, more information

July 2019

7th Annual International ECD Medical Symposium

11 July, Milan, Italy, more information

7th Annual International Patient & Family Gathering

12 July, Milan, Italy, more information.

4th World Conference on Congenital Disorders of Glycosylation (CDG)

26 - 27 July, Lisbon, Portugal, more information.

Cornelia de Lange syndrome World conference

31 July - 03 August 2019, Bad Neuenahr-Ahrweiler, Germany, more information

August 2019

Cornelia de Lange syndrome World conference

31 July - 03 August 2019, Bad Neuenahr-Ahrweiler, Germany, more information

September 2019

2019 CHI Family Conference

6 - 8 September 2019, Philadelphia, PA, USA more information

7th UIA Associations Round Table Asia-Pacific

19-20 September 2019, Pattaya, Thailand, more information

November 2019

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information and registrations

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information

December 2019

Patient Solidarity Day 2019

7 December, more information

January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information