H-CARE Survey communications toolkit

Use these resources, available in 23 languages, to share the new global Rare Barometer survey with your networks.

 

The more people who respond and share their experiences, the more powerful our voice will be!

Click on the links to download the materials.

1. Survey hyperlink

Share this link to the survey: http://tiny.cc/h-care

2. Rare Barometer survey overview

Learn more about the survey, who can respond and how the results will be used.
H-CARE Survey Overview

3. Language-specific communications materials

Download and use the suggested posts, images and email template, translated into your language, to promote the survey via your networks. You can also share our posts from @eurordis on Twitter, or the EURORDIS Facebook page via your social media accounts.

Bulgarian

Email template

Social media image

Suggested social media posts

Social media video 1

 

German

Email template

Social media image

Suggested social media posts

Social media video 1

 

Portuguese

Email template

Social media image

Suggested social media posts

Social media video 1

 

Croatian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Greek

Email template

Social media image

Suggested social media posts

Social media video 1

 

Romanian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Czech

Email template

Social media image

Suggested social media posts

Social media video 1

 

Hungarian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Russian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Danish

Email template

Social media image

Suggested social media posts

Social media video 1

 

Italian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Slovak

Email template

Social media image

Suggested social media posts

Social media video 1

 

Dutch

Email template

Social media image

Suggested social media posts

Social media video 1

 

Latvian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Slovenian

Email template

Social media image

Suggested social media posts

Social media video 1

 

English

Email template

Social media image

Suggested social media posts

Social media video 1

Social media video 2

 

Lithuanian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Spanish

Email template

Social media image

Suggested social media posts

Social media video 1

 

Finnish

Email template

Social media image

Suggested social media posts

Social media video 1

 

Norwegian

Email template

Social media image

Suggested social media posts

Social media video 1

Swedish

Email template

Social media image

Suggested social media posts

Social media video 1

 

French

Email template

Social media image

Suggested social media posts

Social media video 1

 

Polish

Email template

Social media image

Suggested social media posts

Social media video 1

 

 

4. Rare Barometer logos

Use the Rare Barometer logos alongside articles promoting the survey on your website.

Rare Barometer Logo (white)

Rare Barometer Logo (purple)

Page created: 04/12/2019
Page last updated: 09/01/2020
 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases