The 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016 Edinburgh)

The 8th European Conference on Rare Diseases & Orphan Products (ECRD) takes place from 26 to 28 May 2016 at the Edinburgh International Conference Centre, Edinburgh, UK.

For more information about ECRD 2016 Edinburgh, visit the official conference website: www.rare-diseases.eu or see the #ECRD2016 on twitter

Motto of the European Conference on Rare Diseases & Orphan Products (ECRD)

  • The ECRD is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders – patients’ representatives, academics, health care professionals, industry, payers, regulators and policy makers.
  • It is a biennial event, providing the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives.
  • It covers research, development of new treatments, health care, social care, information, public health and support at European, International, national and regional levels.
  • It is synergistic with national and regional conferences, enhancing efforts of all stakeholders. There is no competition with them, but efforts are complementary, fully respecting initiatives of all.

 

Official Conference Partners of the ECRD 2016 Edinburgh 

EURORDIS: Conference organiser
DIA: Conference co-organiser

 

Official Partners

EFPIA: The European Federation of Pharmaceutical Industries and Associations

EMA: European Medicines Agency

ESHG: European Society of Human Genetics

EUROPABIO: European Association for Bio Industries

EUCOPE: European Confederation of Pharmaceutical Entrepreneurs

FDA (OOPD): Food & Drug Administration, Office of Orphan Products Development

Genetic Alliance UK

HOPE: European Hospital and Healthcare Federation

NIHR RD Translational Research Collaboration

Orphanet

The Scottish Government

 

With the support of:

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Page created: 24/09/2015
Page last updated: 19/03/2018
 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases