Albert van der Zeijden

After a study educational theory at the University of Utrecht he became a teacher and principal of a teachers’ trainings college till 1982. Till 1988 he was the chairman of the board of another teachers’ training college.

 

In 1980 he became interested in health care and patient advocacy after he was diagnosed as having Crohns’ disease and enkylosing spondylitis (Bechterews’ disease). Since 2005 his heart is supported by an implantable cardio defibrillator (ICD) after a heart arrest. Since 1982 Mr. van der Zeijden has been one of the initiators and (vice)-presidents of many patients’ organisations as well at the national, European and international level. Including the Dutch Crohns’ and Ulcerative Colitis Association (CCUVN) and the European Federation of Crohn’ and Ulcerative Colitis Associations (EFCCA), the Council of the Chronical Ill and the handicapped of the Netherlands (CGCouncil), the International Alliance of Patients’ Organizations (IAPO) and the Dutch Steering Group on Orphan Drugs.

At present he is the representative of the International Alliance of Patients’ Organizations at the European Medicines Agency (EMA) as well as a member of numerous boards, committees and working parties, including:

The Pharmaceutical Risk Assessment Committee (PRAC) of EMA
The patients’ and Consumers’ Working Party (PCWP) of EMA
The European Health Forum Gastein (EHFG)
Vice-president of Health First Europe (HFE)
The Dutch agence for the registration of adverse drug reactions Lareb

 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases