Anne-Laure Aslanian

  • Patient Engagement Manager Healthcare – ERN & Healthcare / European Patient Advocacy Groups

Anne-Laure Aslanian joined EURORDIS in March 2019 as Patient Engagement Manager. She is managing and supporting 8 out of the 24 European Patient Advocacy Groups (ePAGs) that were set up by EURORDIS to ensure a meaningful patient advocates’ engagement across all European Reference Networks (ERNs) activities.  Anne-Laure also leads the communication and knowledge management activities to support the 24 ePAGs’ work and facilitate exchange of good practices and access to information.

Anne-Laure has several years of experience in research and innovation project management and development of international research project proposals. Prior to joining EURORDIS, she worked for 4 years in a hospital research institute and in a biomedicine center in Barcelona to foster the participation of researchers and clinicians in research grants opportunities and to enhance their collaboration in European healthcare initiatives.

She holds a Master’s degree in European Studies and International Business Law from Aix-Marseille University (France).

She is a native French speaker, she also speaks English, Spanish, Catalan and basic Portuguese.

Telephone: +34 93 220 48 60
Email: anne-laure.aslanian@eurordis.org

 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases