Ariane Weinman

  • Public Affairs Senior Manager

Ariane Weinmann

Ariane Weinman joined EURORDIS in 2004 and works in the Public Affairs team.

She is involved in European public health projects where EURORDIS is leader or partner, currently the EU Joint Action for rare diseases, RD-ACTION, and the EU Joint Action for Rare Cancers, JARC. She is particularly involved in supporting the work of patient advocates in a) implementing EU integrated national plans for rare diseases, and b) in providing recommendations to integrate provisions for rare cancers in adults and paediatric cancers in all national plans for cancer control in EU member states. Ariane also supports the European Patient Groups’ Advocates (ePAGs) in the four European Reference Networks (ERNs) for, or related to rare cancers: EURACAN, ERN PaedCan, EuroBloodNet and GENTURIS.

Ariane has a broad knowledge of the international aspects of medicine, public health and scientific research which are a recurring focus in her professional experience.

She has previously worked for the French Federation of Public Hospitals and the Scientific Department of the French Embassy in China. Ariane holds a Master of Arts in International Policy Studies from the Monterey Institute of International Studies.

She speaks French, English and Mandarin Chinese.

Telephone: +33 1 56 53 52 65
Email: ariane.weinman@eurordis.org

 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases