Clara Hervás

  • Public Affairs Manager

Clara Hervás is Public Affairs Manager at EURORDIS, based at the Brussels office.

As part of the European and international advocacy team, Clara is responsible for a range of advocacy and communication activities, including the creation of reports, research of policy issues, support to advocacy campaigns and daily monitoring of media. She is Policy Coordinator within the NGO Committee for Rare Diseases at the United Nations, and supports the advocacy work of Rare Diseases International (RDI).

Clara has previous experience working for NGOs and international organisations. She was Campaign Coordinator for a Belgian development non-profit organisation and also worked for the Information and Communication Technologies Sector Unit of the World Bank.

Clara holds a Bachelor of Arts in Human Geography from the University of Cambridge, as well as a Master of Science in Global Politics from the London School of Economics.

A Spanish national, Clara was born in Luxembourg, grew up in Belgium and moved to the United Kingdom to study. She returned to Brussels in 2016.

Her mother tongue is Spanish and she speaks fluent English and French, as well as basic Italian

Telephone: +32 2 274 06 10

La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases