Lara Chappell

  • Communications Director, Head of Communications & Development

Lara Chappell

Lara Chappell joined EURORDIS in December 2011 and was named Communications Director, Head of Communications and Development in January 2018.

Lara is responsible for EURORDIS' external communications and development strategy as well as overseeing the management of events, staff and budget. She makes the link between these three activities internally. She also manages EURORDIS' branding, web technology and in-kind partnerships.

In her previous role as Communications Director for EURORDIS Lara oversaw the growth of the international Rare Disease Day campaign to more than 90 countries in 2018. People were invited to #ShowYourRare and paint their faces to celebrate the day.

Previously, Lara was the spokesperson in France for the US National Basketball Association (NBA), managing press relations and events. She continued to work for the NBA focusing on marketing sponsorships and then managing a grass-roots event in schools throughout Europe.
She holds a Bachelor of Arts in French Culture with a minor in Mathematics from the University of Pennsylvania as well as a Master of Business Administration from HEC (École des hautes études commerciales de Paris) in France.

A dual French-American national, Lara grew up in the US state of New Jersey and has lived in Paris since 1991.

A native English speaker, she is fluent in French.

Lara is married with two sons, the elder of whom is living with Angelman Syndrome.

Telephone: +33 1 56 53 52 60
Email: lara.chappell@eurordis.org

 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases