Martina Bergna

  • Events Manager


Martina Bergna joined EURORDIS in September 2018.

As part of the Communications and Development team, Martina provides support in the development, registration management, organisation, promotion and fundraising of EURORDIS’ major flagship events.

This includes the European Conference on Rare Diseases and Orphan Products (ECRD), the EURORDIS Black Pearl Awards, the Multi-Stakeholder Symposium on Improving Patients' Access to Rare Disease Therapies and the ERTC (EURORDIS Round Table of Companies) workshops.

Martina is responsible for developing digital communications plans for EURORDIS' major events and for the editorial and design of targeted communications materials. She oversees the design and content of the and websites. Martina also manages the EURORDIS Photo Contest, an international campaign which aims to raise awareness about the daily lives of people living with a rare disease.

Prior to joining EURORDIS, Martina worked for 4 years in event operations, management and communications, both in the private and public sector, including work experience for the European Parliament, the European Commission and Oxfam Magasins du Monde.

Martina holds a Bachelor’s degree in Communication and Translation from IULM University in Milan and a Master’s degree in International Relations from ULB University in Brussels.

Martina speaks Italian, English and French as well as some Spanish and basic Portuguese.

Telephone: +33 1 56 53 52 66

La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases