Paloma Tejada

  • Rare Diseases International Director


Paloma Tejada joined EURORDIS – Rare Diseases Europe in 2007 as head of Communications. She launched the first Rare Disease Day campaign in 2008, growing it from a European patients’ awareness day to an international campaign that mobilises all stakeholders in more than 90 countries today.

In 2014, Paloma was trusted with the launch and development of Rare Disease International – a EURORDIS-led initiative to build a global alliance of rare disease patients across the world to speak with one voice. In 2017, she became Director of Rare Diseases
International, which is now a legally- incorporated international NGO.

Paloma has extensive experience working for not-for-profit and non-governmental organisations in Europe, America and Asia. Previously she worked for worked for Médecins du Monde as a Programme Coordinator for their international HIV/AIDS network. She also worked for Chemonics International, a consulting firm that manages development projects for the World Bank. She spent a year in New Delhi where she managed donor relations for a water and sanitation programme in Tibetan refugee settlements.

After obtaining a Bachelor of Arts in Communications from the American University in Washington DC, she went on to complete a Master of Science in Development Management at the London School of Economics.

A dual Peruvian-French national, she grew up in Lima, lived in Washington DC, London and Paris. She has been based in Geneva since 2014.

She is fluent in English, French and Spanish.

Telephone: +41 763 60 47 25

La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases