Josep Torrent-Farnell

Dr. Josep Torrent-Farnell. PhD in Medicine and Surgery and Bachelor of Pharmacy, specialist in internal medicine and clinical pharmacology. Head of the medicine division of the CatSalut, of the Generalitat de Catalunya (May 2016). Full Professor of the Department of Clinical and Therapeutic Pharmacology of the Universitat Autònoma de Barcelona and Head of Section of the Pharmacology Service of the Santa Creu i Sant Pau Hospital. First elected President (2000-2007) and member of the Committee for Orphan Medicinal Products and the Scientific Advisory Committee of the European Agency (2009-2012), member of the Rare Diseases Task Force. EURORDIS expert on research and training programs. He also was a Public Health Executive Agency for the European Union (2006-2010). Expert in the National Strategy for Rare Diseases (2007-2012), member of the Advisory Committee on Minority Diseases (CAMM) and chair of the High Complexity Pharmacological Treatment Advisory Council, Catalan Health Service (2010-2016). Chairman of the Scientific Committee of the CIBER Rare Diseases, President of the Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC). He is an expert from the Conseil Scientifique de l'Agence Nationale de Sécurité du Médecament et des Produits de Santé de France (2010-2016). Member of the Ethics Committee of Farmaindustria (2001-2016). Coordinator for the creation and first executive director of the Spanish Medicines Agency (1998-2000) and Head of the innovative drugs sector of the European Agency (1994-1998). Order of the Civil Order of the Ministry of Health (2009). Special distinction of the Association of Patients of Rare Diseases of the United States (NORD, 2005). Special Distinction to Leadership in Rare Diseases in Europe by the European Federation of Rare Disease Patients (EURORDIS, 2015).

 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases