Sandra Pavlovic

  • RareConnect Outreach Manager

Sandra Pavlovic

Sandra Pavlovic joined EURORDIS in 2015 as RareConnect Outreach Manager.

Sandra is part of the RareConnect team and is based in Belgrade. After being responsible for developing and maintaining RareConnect online communities specifically within the Balkan region and East Europe her job has expanded to encompass RareConnect communities and conversations across continents and languages.

Sandra has a long term experience as a patient advocate. She has worked as a volunteer as Vice President of the National organisation for rare diseases of Serbia since 2013, and as President of  DEBRA Serbia association since 2010. Among other responsibilities and fundraising related activities, she has organised many events such as conferences, panel discussions, round tables and awareness days. Sandra has also represented organisations on television and local media and participated in working groups related to the amendment of various laws and regulations in the health and social care system in Serbia. Sandra has been working on several projects for improving the quality of life of people affected by rare diseases in Serbia and the Balkan region.

Sandra has two children, the youngest of whom has Epidermolysis bullosa.

She is a native Serbian speaker and also speaks English and Russian. 

Telephone: +381 6 66 67 27 03
Email: sandra.pavlovic@eurordis.org

 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases