Terkel Andersen

  • President

Terkel Andersen

 

President of the Board, EURORDIS-Rare Diseases Europe

email: terkel.andersen@eurordis.org

Terkel Andersen was elected President of EURORDIS-Rare Diseases Europe in May 2003 and has been a member of the EURORDIS Board of Directors since 1997, when the organisation was founded.

A person with haemophilia himself, Terkel has broad experience in disability and health issues becoming involved in the rare disease field in 1983 when he joined a Nordic project on the mapping of problems related to rare diseases. Terkel served as president of the Danish Haemophilia Society 1985-2017. He was one of the founders of the Danish Alliance of Rare Disorders in 1986 and worked as the first Executive Director of the Centre for Rare Diseases and Disabilities of the Ministry of Social Affairs in Denmark from 1990 to 2001.  From 1992 to 2002, he served on the executive board of the World Federation of Hemophilia; and from 1993 to 1999, he was chairman of the European Haemophilia Consortium.

In his professional capacity Terkel worked with the Danish National Council for Volunteering until October 2018.

Terkel represents EURORDIS at International Conferences throughout Europe and beyond.

 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases