Vlasta Zmazek

Vlasta Zmazek

Croatian Alliance for Rare Diseases

e-mail: vlasta@debra-croatia.com

www.debra-croatia.com

Vlasta was elected to the EURORDIS Board of Directors in 2012 and again in 2016.

She is the mother of two sons, the youngest of whom lived with epidermolysis bullosa.

She has been president of DEBRA Croatia since 1996 and provides support for DEBRA Slovenia, Bosnia and Serbia. She is also a member of the Executive Committee of DEBRA International. In 2010, she was a founding member and was elected President of the Croatian Alliance for Rare Diseases. Since then Vlasta has been involved in the organisation of Rare Disease Day in Croatia, of National Conferences and the preparation of the Croatian National Plan for Rare Diseases in cooperation with the Ministry of Health. Vlasta has also provided support in the creation of the National Alliances in Slovenia, Serbia and the former Yugoslav Republic of Macedonia.

Vlasta is a EURORDIS EUROPLAN advisor and was a member of the Programme Committee for the EURORDIS Membership Meeting 2013 in Dubrovnik. Vlasta represents the Croatian Society for Rare Diseases in the EURORDIS Council of National Alliances.

 

 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases