20th ERTC Workshop, Brussels: "Unlocking Europe's Potential in Rare Disease Therapies”

20th Workshop of the EURORDIS Round Table of Companies

"Unlocking Europe's Potential in Rare Disease Therapies”

 

February 26th, 2014

A 10 Year Anniversary Workshop!

Brussels, Belgium
 

Birthday cake

The 20th ERTC workshop explored the ambitious overarching theme of “Unlocking Europe’s Potential in Rare Disease Therapies” between now and 2020 - celebrating ten years of dialogue and collaborative efforts between patient advocates, industry, regulatory agencies and national competent authorities to move forward the development of treatments for rare diseases. The focus was on the research agenda of the new EU Framework Programme Horizon 2020 and the synergies between the European Medicines Agency, the Innovative Medicines Initiative 2 (2014-2020), industry, patients, and science, in order to make sure that the momentum is sustained and new opportunities are optimised. The 90 participants discussed how each partner has a vital role to play in paving the way for new treatments development – industry, policy-makers, regulators, patients, and academia. Over the past ten years, the twice yearly round tables have regularly tackled the key issues that can unblock bottlenecks and advance real solutions for more, safe, efficient, effective, affordable, accessible therapy development.

Participants: 90

Agenda 
Concept Paper 

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 

 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases